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Live well, die well - an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study

Introduction Adequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality personalised care at the end of life in different countries and cultures, by investigating the experiences, concerns, preferences and use of care of termin

Monitoring the standard – here, now and in person : Detecting accessibility faults as an engaged citizen

This chapter analyses volunteer work for identifying and reporting accessibility faults in urban settings. By looking closely at how people monitor adherence to the accessibility standards of laws and human rights, it is possible to recognise and understand their concrete fight against exclusion and discrimination. The author uses ethnographic data from go-alongs with two ‘accessibility detectives

Social Media Sad Girls and the Normalization of Sad States of Being

This paper examines virtual manifestations of “sad girls” on the media platform Tumblr. Here users write about their struggles with mental illness, revealing a set of shared experiences that encompass both psyche and body. Predominant narratives of what it means to be mentally ill are questioned, and alternative conceptualizations of the psyche are introduced. I argue that the sad girls legitimize

The Later Life Audio and Radio Co-operative: considering radio as a technology to promote citizen dialogue in later life

The Later Life Audio and Radio Co-operative (LLARC) is an England-widenetwork of older content creators, age-inclusive radio stations,third sector organisations, local authorities and academics workingon ageing issues. The co-operative was established in 2019 as anoutcome from a participatory action research project. Aiming topromote talk-based content created by older adults, the LLARCadvocates f

Gender by design : Performativity and Consumer Packaging

Mass-produced consumer packages are everyday objects that almost go unnoticed. However, by claiming things such as the essence of femininity or masculinity, they affect us and are co-creators of our reality. Based on visual ethnography, this article traces the representation of gender on mass-produced packaging during a time when male privilege is being challenged and female visual objectification

Breast cancer diagnosis using extended-wavelength diffuse reflectance spectroscopy : comparing tumor subgroups

Optical imaging utilize light to analyze biological tissues in detail, non-invasively and without harmful radiation. Examples include ultrasound optical tomography and photoacoustic imaging; both use a limited number of wavelengths. Diffuse reflectance spectroscopy, another optical technique, covers a continuous wavelength range, but without generating an image. This study focuses on extended-wave

Dealing With Temporality in Patients With Life-Limiting Disease : An International Qualitative Study

The prospect of death influences people’s thoughts about and how they deal with their remaining time. We aimed to understand whether patients with progressive, life-limiting diseases are oriented in the past, present, or future and how they deal with temporality. We conducted 57 in-depth interviews with end-of-life patients in 10 countries using thematic analysis at three levels (i.e., locally in

Investigation of turbulence models applied to premixed combustion using a level-set flamelet library approach

Most of the common modeling approaches to premixed combustion in engineering applications are either based on the assumption of infinitely fast chemistry or the flamelet assumption with simple chemistry. The level-set flamelet library approach (FLA) has shown great potential in predicting major species and heat release, as well as intermediate and minor species, where more simple models often fail